Wednesday, 19 September 2007
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National ADHD Awareness Day
Today my friends, is National ADHD Awareness Day. And yes, that's me. It's a lot of you too. Some of you have kids that have it. Some of you have kids you wonder if they have it. Some of you may even wonder if you or your spouse has it. The answer is...maybe.
Now for those of you with kiddo's you wonder about, let me clear some things up very quickly:
1) a teacher cannot diagnose this
2) neither can a school counselor (no matter what they tell you or how good references are)
3) the principal can't either
4) neither can your pediatrician
Now all of these people may see the obvious and their guess may well be better than others...however, the only one that can properly diagnose ADD/ADHD is a psychiatrist-one with experience in ADHD. They are also the only ones that can write a prescription for any of the meds used to treat it. They are also the ones best trained to help teach you how to help yourself.
What I would like all of you to know is this: fear not. Really. And please don't be afraid of the medications used to help yourself or your child. Back in the 80's when I first realized a couple of my kids might be ADHD, I was terrified of all the things I heard about "drugging your child" and I refused to seek help. It was one of the biggest mistakes I ever made. I still beat myself up over it.
So what to do? First off, trust your instincts. If you think your kid is bouncing off the walls and thinking and talking faster than the speed of sound, seems more impulsive and a bigger risk taker than other kids, he/she probably is. Mothers know things. The standard saying is people with ADHD have Farrari minds and Chevy brakes.
Secondly, educate yourself. Read. I don't recommend reading everything you find, but look for books written by doctors that have ADHD themselves. A couple of the best books to start out with are Driven To Distraction : Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood by Edward M. Hallowell and John J. Ratey,
Delivered from Distraction: Getting the Most out of Life with Attention Deficit Disorder by Edward M. Hallowell and John J. Md Ratey (Paperback - Dec 27, 2005).
In your research, please don't be swayed by titles with the word "stop" in them. You cannot stop ADHD. It is something you or your child will live with for the rest of their life. It is an ongoing condition and an incredible gift. Many people with ADHD are nothing short of sheer genius-Sir Richard Branson is my favourite example. Think what you will of him, but the man is nothing short of amazing. Ty Pennington and Mark Lowry are other examples.
If your child has ADHD, there may well be a learning disability going along with it. I struggle with dysgraphia, dyscalculia and mild dyslexia myself. In other words, while I struggle to write with a pen or pencil in my hand, I can do wonders with chalk or a paintbrush-in either hand. Spelling is almost nonexistent. I cannot do math without a calculator or fingers and toes, and higher math problems elude me completely because I cannot remember more than three steps. On writing numbers down, I can tell you something is $1.69, know it is $1.69 and yet I will write it down as $1.96 every time. (This makes checkbooking a blast, let me tell you.) However, if I can do it on the computer and talk to myself as I do it, it usually comes out right. I read fairly well and God knows I am extremely well read...however, I usually cannot remember much of what I read just if I liked the book or not. Book clubs and lit classes are not for me.
Most of you know I recently left the library to come home and write. This would be a challenge for anyone, but for someone with my problems, it's a real struggle. Working for yourself requires incredible self discipline-something that does not come easily or at all for those with ADD/ADHD. I had to do a lot of research before I did it...mostly in the form of organizational books. For people with ADHD regular books written by professional organizers are useless. In fact, they make matters worse. File cabinets? The devil's workshop. Cute little wicker baskets in the bookcases? Nightmares. Tidy drawers? Never happen.
The book I found most useful in helping me sort things in my office is How to get organized without resorting to arson : a step-by-step guide to clearing your desk without panic or the use of open flame / Liz Franklin.. Another for around the house is by Susan C. Pinsky called Organizing Solutions for People with Attention Deficit Disorder.
In doing my office over I had to paint the room. I am terribly sensitive to colours...the colour orange completely freaks me out. Blue makes me sleepy (my bedroom is blue) and red has too much energy. White walls are boring and I will spend my time thinking of other colours it should be painted. It's a total distraction.
My office is painted in pink and white. Energy and brightness.
Textiles matter. I hate clothes. I really do, but since I must wear them they must be soft and a bit loose. Tags get cut out straight away. The colours have to be right too. See above.
Light...if you are sensitive to colours, you will be sensitive to light. It has to be not only just right, but in the right places as well. Florescent lights suck weasels. They make noise. You might not be able to hear it but I can. They also "flash"-another thing you might not be aware of but I am. Painfully.
Noise. Dear God the noise. Things you will never notice get my complete attention. This is where the ipod or the bose come in handy. I must have bigger noise to drown out all the little noises. This is also where the music therapist comes in, but more on that tomorrow.
Tactile input. Another little oddity. If I go in a store, I must touch things. If I go in a fabric or dress shop, I must run my hands along the fabric. A flower shop, I must touch the petals and smell the flowers. Maybe all of them. I adore museums, but I really really struggle to keep my hands to myself. This sort of thing was a nightmare for my mother and teachers who don't like you to touch anything. On the other side of that, I am rather sensitive about being touched. I might let you hold my hand, but not for very long. I might let you drape your arm across my shoulders while we walk, but not for very long. While I might snuggle up next to you, I will not let you return the favour...at least not for very long. (This does not include sex. Whole different ballgame there.)
Now the reason I tell you these weird things about me is not so you will pass judgment on me, but to let you have a small glimpse of my life and see if you recognize it in yourself or your child. Why do I want you to see? Because I was not diagnosed till I was in my 40's and I can promise you, my life would of been so much easier if I had known what my problem was when I was a kid. Because everything was so damned much harder than it ever had to be..if only we had known.
Don't do that to your kid.
Don't do that to yourself.
And please, for further help and ideas go see my friend Ira-the man is sheer genius. Really.
http://speedchange.blogspot.com/
Currently Reading
Driven To Distraction : Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood
By Edward M. Hallowell, John J. Ratey
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Comments (115)
Oh how I love you, Auntie Katekate.
"The standard saying is people with ADHD have Farrari minds and Chevy brakes. " " Florescent lights suck weasels."
That is so awesome! lol I completely agree. Actually, I stayed after talking with one of my professors and he asked me to call the school psychologist because he thinks many of my "problems" stem from undiagnosed ADD. And a few years ago my friend with ADD suspected I had it and tried to test me herself... I just wasn't paying attention, lol. So we'll see if I do. I just have to remember to call the lady when I have time. The key is remembering.
This was a great, informative post and I loved getting to know more about you. Thanks for sharing
~Snow
What an excellent entry!
I will take your advice to heart and keep it there for when I both become a teacher and a parent.
PS: I'm super tactile too. Probably one of the reasons I love to quilt.
I love this post!
And RYC - I was thinking if I perfected my bike riding skills, I'd switch to that mode of transportation....
I've read much and much on the subject over the years. And found some good material. But I never knew that my HAVING to touch everything was related!! My friends just know that I'm a texture freak and I simply will touch everything in sight. And I didn't know that my being driven to distraction by the hum of the refrigerator was part of it. And my fussing over the seams of my socks when I was a child was just 'cause I was overly fussy, so I was told.
You know of course that it is very difficult to get an appointment with a knowledgeable psychiatrist? I waited for over a year and a half to get my eldest in, (because this doctor really is well respected) and even so it is very hard to get follow up visits. And yes, the doctor has ADHD himself, so actually GETS it, the first professional I've run into who actually understands. Thank God our pediatrician is able to renew the prescription, because the psychiatrist is swamped.
I am amazed by your post, I have learned so much...I sometimes wonder if my compulsive nature is a result of this, and also why it's such a struggle to stay on task...My memory is horrible, and I am distracted so easily...I also need to touch things, which got me into trouble when I was small and older, too. I thought my obsession with color was a non-issue, and now I wonder...I am very much affected by colors...and will change a few times in the morning because the color isn't right...I also have 5 small lamps in my office and turn off the flourescent...hurts my eyes terribly...there are very sensitive to light. When I studied when I was getting my masters, I had to stay at work to complete papers, because if I went home, I could never stay with it...too many distractions.
Honestly, I never thought about this, and I think I'll look into it now...thanks, K8te-K8te. It was a good decision for you to leave the library, and I guess when I asked how the writing was going, I kinda knew already it was an issue for you to stay focused...since I am so used to living this way, I can definitely see how that would be a challenge for you. Still, I think you're a marvelous wonder for all that you do and accomplish, and I am proud to be your friend.
Thank you!
Hugs, Lowie
I understand the floresient light thing, I get miagranes, and they drive me bonkers!
Well someday (hopefully soon) I"m going to record myself singing some of my songs for school. It could be fun. If you really can't wait, I'll put up some stuff from my lessons. That stuff is usually choppy because we stop to fix stuffs.
Dang! I never thought of someone wanting to stealing my identity, if I had posted them last week they would have had my SSN on them too (can I say stoopid or what)...anyway thanks bunches!....
This was an awesome post, I see lots of this in myself too, I hear and see the florescent lights and I think when I have to use them it gives me a really bad headache, however my desk here at work has enough sunlight that I never have to use them unless it's really cloudy or at night (this drives people crazy )
But your post yesterday was even more so, maybe I will sleep better tonight!...you are a wealth of information.......ilym
I never knew it had to be diagnoised by a psychiatrist.
Hmm. I went to my Ladies Bible Study Group tonight. We are doing video a series by Beth Moore about Believing God. I like this idea, I think to myself, and I decide to join. Part of joining such a group means you have to show up. So show up I did. And I watched the video, and found myself learning quite a bit. That is, until some kid (or kids) decided to go running up and down the halls of the floor above us. Not that it drowned out our video, because it certainly did not... but I promise I didn't hear an entire sentence that Ms. Moore said after the halfway point of our video because of those darn kids. I thought about it being National ADHD Awareness Day. I thought about choking those kids. Then I realized that it isn't their fault and tried hard to focus. And then I wondered.... how do you do it?!
I love you Kate.
Anyway, my dad was forty-two or forty-three or forty-four before somebody told him he had ADD. I never did get into that with him, but I'd imagine that little bit of perspective might have been helpful to him with some then-present-day issues, and that it might also have been good if it'd have found that out thirty-five years earlier. It's easy to get down on the psych profession, but it's a pretty beautiful thing in many ways.
That's a really open, candid account of things.. Thanks for writing that.
When I was a kid, eleven or twelve or thirteen, my family went to counseling.. I might get into that on my own blog someday, but it's a bit much to get into here in your comments...
The museum thing cracked me up... Our State Museum is getting a major rehab, which is going to include a lot of materials from the State Library and Archives.. This past week the design firm that's doing the work was up to look at the materials that we wanted in our galleries, so many of my coworkers and superiors have been busy pulling the "treasures" of the Archives to show. (Prospective thieves can forget about it - it's all back under lock and key now.) So yesterday I got to walk through and look at literally some of the most amazing historical documents in this state, which had been laid out in an extraordinary display in the Map Room.. I thought for a moment that it would be nice if they kept them there, but then thought of people coming to see them and that folks might not be reliable for keeping their hands off. So your situation made me smile.
We have a lot of the same problems (math, spelling etc...) must be why our book club works, we never talk about books. I have never looked at my problems as deficites. Embarasing at times, but not deficites. I have another Watson instalment for you. Check your mail.
Hi Katers,
This reminds me why and how I learn different than so many. I think I must have a bit of this because of so many other factors. I totally get the fluorescent lights, I think they buzz horribly!!! Colors also affect me, but not as bad as the lights do. I hate blaring lights and always did well working at night (I did not have to deal with all the fluorescent lights) I too am goofy over textures in things. I must like the feel of something or its a no go. Its also why I have gone into public bathrooms only to remove my pantyhose, if they get the slightest bit twisted or turned, forget it, there is not hope in fixing them. Takes me forever to put them on. Sock are the same, they MUST ALWAYS go on the same foot, or I will throw them away!!! Cannot stand it!!! With shopping I touch and smell everything. Math is a nightmare and I can remember sitting for hours and hours with my Dad (who is a math person) going over my multiplication tables! He thought I'd never learn. Of course I didn't learn for many, many years. Imagine my horror when I had to learn and do this in college. The strange thing is by then I had something that clicked. I could do it even in my head. When we where in a high stress situation like a code they always turned to me for the answer in what dose something should be. I see Cody struggle with many of the same. He was a kid who hated to color, and still does. Still he can do word search well (I hate these too) We did have him tested by a group of psychiatrist that deal only with ADD/ADHD and they found he too has it. Its not to the level I find that I have (like with clothes) but still it takes a lot to get through school with. We did try some of the meds, but he had a horrible reaction to 2 of them, so we have to try and do it with behavior modification and he gets some things in school that help (like extra time on tests, and help with reading if needed for these exams, ect) The organization is hard for all of us, so I might need to try and read the above book.
Thanks for putting this out there, its always good to remember that others have some of our issues and live happy and productive lives...even if the desk or kitchen need a major overhaul (but that is for another day)
Thanks too for all your kind posts and encouragement about Cody and my back. Your a precious friend who makes my life richer!
Well, I never realized - I have to admit that I never realized that it encompassed all of these different - sensitivities? (And I wonder if it is possible to develop some of these as you grow older - the lights - Agh!)
Thank you for this well written piece - five stars from me!
As I was researching ADHD because of my children, I came across a book that helped me a lot. It was Quirky Kids by Peri Klass and Eileen Costello. It deals with Autism and Autistic Spectrum disorders, but it also had info that applied to kids with ADD and ADHD.
Thank you for posting this. Hopefully it'll educate those with or without ADHD and not make impulsive judgments.
My oldest has ADHD, and I hate havingto put him on meds for it and really think they do dumb him down. What they do do for him is make it easier for him to concenrate. He is a very smart kid who loves sicence andmath and yes he had somelearn problems as well and it took a good many years to ge thim through it, but his were all in reading and spelling. But we worked through those. and in my mistake I took him off the meds for several reasons, it dumbed him down, even though it helped in some areas it still dumbed him down and he wasn't my son really any more. Also his dad didn'thelp to keep him onthe meds cuz when he went for his summer visit his dad took him off completely that asshole. But anyways now I am lookinginto gettin him back on meds just something different and if I don't find something i think is good then I plan on going the herbal route, there are a shit load of herbal meds some tested by the government and they work. I much more agree with the herbal method than anything else, I feel when humans mess with stuff they destory the true balance of the substance, whenteh substance in its true form would be safer in most cases and better for the person taking them. But that is all my views, and each person with ADHD will find somethign different that works for them, and as long as it works for the person who needs it then that is what matters. I also think we hit and ADHD craz were everyone in some manner actually has a degree of ADHD. I know i do to a point but i have other mental issues as well, which I am no longer medicated for andnever will be again. i found the right method formyself and it took amny years to find but I did it, because I refused to think my only option was meds, when there are other ways to control behaviors ine ach of us. it i just most seem to take the easy medicated ways to help their self instead of looking for the core problem and helping themselves ina natural way. Well I ahve said enough on your site now. But great subject by the way. People really do need to read more about all this stuff anyways.
Nieza
good stuff. i think that... OOOOHHH LOOK A BLUE BIRDIE!!!
My! This was so well written and kick ass! It needs to be published straight away!
It describes me in lots of ways. However, my son was diagnosed with ADD. In the 80s, I don't think they tacked on the HD part at all. It didn't matter as he was not HD. I actually had to educate his third grade teacher who had the philosophy with her own kids that they get 'spankings' if they didn't bring home A's. He did take medication and detested the feeling. So after a few years, he took himself off. High School was a drag and in his Freshman year I determined that both him and his step brother needed to be in the work program. They got in there. They both quit school early on....not unexpected. My son learned a trade which was my father's ....surveying. He's not licensed as that would take years of school in courses which would certainly frustrate him worse. Because of his techno spirit (years of video games) he became extremely proficient in the instruments used...but unappreciated. Now he's driving trucks in our community ladened with gas wells and make a pretty lucrative living at it.
In the end, don't you want your children to be upstanding citizens, hard working, with a good ethic in life and work. We do what we have to for our kids.....whether they are olympic material or ADD or cerebral palsy. They are not second rate citizens as I was made to feel when my child was growing up.
I now am raising my grandson. He's a fine boy but he too has learning problems. I've maintained that he should always have the one on one attention. Needs it and deserves it. Finally, a three week progress report with 3 A's and 2 B's. I told him that third grade was going to be a serious task (In Texas they have what they call TAKS testing which will determine his passing on to 4th grade) and that he will need to work to come from behind.
What has helped is that I was fortunate to get him into a learning program developed by Scotish Rite. It's on a local level and much cheaper than Sylvan. He hated it but the mentor gave him many focus exercises which has helped him. He says he doesn't use them but I think he does on a subconsciuos level.
Well, I've rattled on. Perhaps you will be helping someone out there ....I hope so. Congrats on making FC!
Very well said.
Debbie